Living with Mitral Valve Prolapse Syndrome/Dysautonomia

Mitral Valve Prolapse Syndrome with dysautonomia is a potentially disabling disorder that is difficult to control. Once you learn how, you can live a normal life again.

To begin, contact a knowledgeable cardiologist, who specializes in MVPS/D. Some patients have to carry literature to inform their local doctors. Before I found my good cardiologist, I read the few books and articles available then and gave the copied articles to my doctor. He then arranged for a cardiologist, specialized in MVPS/D, to visit the clinic monthly.

The cardiologist might need to prescribe medications for your many and varied symptoms. Not all MVPS/D patients take medications. If you can tolerate your symptoms, as my son chose to do, you don’t need drugs. If you cannot control your chest pain, the doctor may prescribe a beta blocker. If your nervous system gets out of balance and a dysautonomia sets in, other medications can be prescribed so you can live without panic attacks, extreme nervousness, depression, or even migraine headaches. Every patient is different.

Two musts for all MVSP/D patients are exercise and rest. The easiest exercise is a daily, half-hour walk at least four times weekly. If it’s too cold or hot outside, find an indoor place. A treadmill or stationery bicycle can be used. Yet adequate rest is necessary to recondition your body with adequate exercise.

The final necessity lies in diet. Intake no stimulants, which include caffeine and sugar and many food preservatives. Most MVPS/D patients have low blood volume, so it is vital to drink enough liquids daily. A good equation is one ounce of non-alcoholic fluid to every degree of the outside temperature. Thus, if the day is 70 degrees, drink 70 ounces. In the winter, drink eight, eight-ounce glasses daily.

While MVPS/D varies with each patient, all MVPS/D patients must include in their lives diet (and drinking) and exercise (and rest), locate a knowledgeable cardiologist, and perhaps take medications. Once those nasty symptoms are under control, you can enjoy life again.